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melanoma in families
   

Melanoma is a form of cancer that develops from the pigment producing cells of the skin.
If untreated it can spread through the body with serious consequences.

In many parts of the world melanoma is becoming more common. However, it is still unusual to have more than one case of melanoma in a single family. When more than one person in a family has a melanoma, there might be something ‘running in the family’. That ‘something’ could mean other family members are more likely to get a melanoma than people outside the family.

The following information is aimed at:
People who have had a melanoma
People who suspect that their family carries an increased risk of melanoma.
People who have been told that their family carries an increased risk of melanoma

Words in bold are defined in the Glossary at the bottom of this page.

 
 
order the cd-rom
 

There is a detailed CD-Rom/DVD called “Melanoma – Dealing with the diagnosis”. This was produced by Professor Newton Bishop, and colleagues from St James’s University Hospital in Leeds and from Bradford Royal Infirmary. The presentation contains text about melanoma, its diagnosis and treatment.

To learn about this presentation and view the online version please click here.
 
 
 
Melanoma dealing the diagnosis
 

The information in this booklet is about dealing with melanoma, and is intended for patients who have recently been diagnosed with melanoma, and their families. This booklet contains written information, illustrations and photographs.

To download and view the PDF online version please click here.

 
 
Sun protection and vitamin D after a diagnosis of melanoma

Once you have been diagnosed with melanoma we usually advise you to avoid too much sun exposure. This is for two reasons:

It reduces the risk of developing another melanoma
Any sunburn may stop your immune system working as well as it should.

Yet, we know sun exposure is generally important to health because it allows your body to make vitamin D, which is crucial for bone health. There is some evidence that vitamin D may also be important for your health after diagnosis of melanoma. This is very new information and we need the results from further studies before we can be sure it is right. However, vitamin D is necessary for many other aspects of your health, so there is no doubt that vitamin D levels are important.

So what is our advice to you?

The best advice we can give you is to avoid too much sun exposure.

Firstly, avoid sunburn

Secondly, when the UV index is at or above three:

Avoid staying out in the sun for long periods
Avoid the sun between 10am and 2pm in particular.
Use sun protection such as factor 30 SPF sunscreen with four or five stars UVA protection.
Use appropriate clothing to protect your skin where possible.

The UV index will vary depending on where you live in the world, the season and the time of day. For example, people living in Sydney, Australia may need to practise sun protection for most of the year. For people who live in Northern England the length of time will be shorter.
When UV levels are high, adequate vitamin D is quickly created in the skin so prolonged exposure is not necessary.

Thirdly, keep your vitamin D levels up.

You can do this in two ways:

Take a daily vitamin D supplement (such as a multi-vitamin or cod liver oil), particularly in the winter. A teaspoon (tsp) of cod liver oil may contain 450 IU of vitamin D.*

Eat foods that are naturally rich in vitamin D (such as fatty fish and eggs) or that have been fortified with vitamin D (such as some yoghurts and cereals). If you eat reasonable quantities of these foods you may not need to take supplements every day. A portion of cooked salmon (3.5 ounces/99 grams) may contain 360 IU of vitamin D.**

How much vitamin D is enough?

At the moment the ideal intake of vitamin D is unclear. Some authorities recommend 200 IU (five micrograms) per day for the general public but others suggest a far higher dose, especially for the elderly who stay indoors. For cancer patients, it is not known what to suggest and some scientists have concerns that high levels of vitamin D in the blood might be harmful. Research is underway to find the right dose.

In the meantime, our cautionary advice is as follows:

200 IU (five micrograms) of vitamin D a day should be adequate for most people. If you are over 50 years old 400 IU (10 micrograms) is probably more appropriate. Very high doses may be harmful.

If you have kidney disease, a high calcium level, kidney stones or heart disease speak to your doctor before taking supplements.

If you are at all concerned please talk to your healthcare professional

* Figure given by the US Department of Agriculture’s National Nutrient Database for Standard Reference (http://www.nal.usda.gov/fnic/foodcomp/search) accessed 9 May 2009.
** Figure given by the US National Institutes of Health (
http://ods.od.nih.gov/factsheets/vitamind.asp) accessed 9 May 2009.

 
 
Natural, environmental and lifestyle risk factors click here to view this section
 
 
Referral to a specialist click here to view this section
 
 
What gene mutations can cause melanoma? click here to view this section
 
 
Gene Testing click here to view this section
 
 
Further information for families with melanoma click here to view this section
 
 
Lay summaries click here to view this section
 
 
Glossary click here to view this section
 
 

Page updated: 18/03/09

Sun protection and vitamin D after a diagnosis of melanoma

Natural, environmental and lifestyle risk factors

Referral to a specialist

What gene mutations can cause melanoma?

Gene Testing

Further information for families with melanoma

Lay summaries

Glossary

Links

 
   
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